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Patient care
Psychosocial support to patients and families. Expert medical advice to patients, relatives and patients' associations.
PSYCHOSOCIAL SUPPORT TO PID PATIENTS AND RELATIVES
Expert psychological support is offered to children with a PID and their families in a suitable environment and with the optimum material to achieve better clinical outcomes and to promote their quality of life. Special attention is given to parents of newborns diagnosed of SCID through newborn screening that may require stem cell transplantation (SCT).
SUPPORT TO FAMILIES WITH PID CHILDREN: DIETS, TRANSPORT AND ACCOMMODATION GRANTS AS WELL AS INTERNATIONAL AID
Social support for the basic needs and comfort of caregivers is offered during hospitalization periods: food, transportation and accommodation grants, computers and Internet access to support families during hospital admission. Furthermore, the foundation offers international social aid.
SOCIAL CARE AND SUPPORT PROGRAM FOR ADMITTED PATIENTS
We provide didactic material, books, magazines and toys, so that PID admitted patients have all the attention they deserve.