How can I contribute?
Join us to struggle against PID. Make a donation.
Your help is very important to move forward in the field of PID!
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Do you want to be a volunteer?
If you want to work with us as a volunteer of the BCN PID Foundation, please send an email to info@pidfoundationbcn.org
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Blow the Bubble!
Blow The Bubble! and collaborate with BCN PID Foundation for the dissemination and research of primary immunodeficiencies (PID). With you we can improve the quality of life of many children.
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Who we are and what we do in the BCN PID Foundation
The “BARCELONA PID FOUNDATION” (Infection & Immunology) is a non-profit organization founded in 2014 as an initiative of a group of professionals dedicated to the care of pediatric patients with Primary Immunodeficiencies (PID) and patient's relatives.
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What are the Primary Immunodeficiencies (PID)?
PID are a group of more than 300 congenital diseases caused by quantitative and/or functional defects in the immune response.
What happens to people with PID?
People affected by PID have a higher susceptibility to severe infections, autoimmune disorders, cancer and allergy.
Who is affected by a PID?
PID affect 1 in 2000 live births and are considered to be rare diseases. More than 60% of patients are diagnosed during childhood. 10% of them, the most severe forms, can be diagnosed at birth (newborn screening).
BCN PID Foundation Friends
In the struggle against PID, you're the missing piece!
All these personalities from the world of sport, gastronomy, entertainment and culture, have joined to struggle against PID. Thanks to all the BCN PID Foundation friends!
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Toni Soler
Journalist and TV presenter
Magí Garcia
Screenwriter and Comedian
Joel Díaz
Communicator and humoristCurrent projects
PSYCHOSOCIAL SUPPORT TO PID PATIENTS AND RELATIVES
Expert psychological support is offered to children with a PID and their families in a suitable environment and with the optimum material to achieve better clinical outcomes and to promote their quality of life. Special attention is given to parents of newborns diagnosed of SCID through newborn screening that may require stem cell transplantation (SCT).
SUPPORT TO NEWBORN SCREENING (NBS) FOR SCID
We support the universal implementation of Newborn Screening (NBS) for SCID in Spain. In Catalonia it is already ongoing since January 2017 and more that 70,000 newborns have already been screened.
THE PIDCAP PROJECT: Early diagnosis in Primary Care Centers
The project aims to get an earlier diagnosis of PID in primary care centers through a computerized diagnostic algorithm and manage a better coordination with the reference centers in PID.
Grants
Social grants
The foundation offers several social grants for PID patients and their families.
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"Àlex Garcia" grant
The Foundation board will designate the candidates to be eligible for this grant, to carry out a research project in the field of primary immunodeficiencies with a maximum duration 1 year and a maximum amount of 6.000 euros.
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"Jana Esteve" grant
A maximum of three grants (with an amount between 250 and 500 euros each) will be awarded annually for the attendence to conferences and training courses about primary immunodeficiencies.
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"Juan Gauxax" grant
The Foundation board will designate the candidates to be eligible for this grant, to carry out a research project in the field of primary immunodeficiencies with a maximum duration of 2 months and a maximum amount of 1.500 euros.
More info
Grants
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